Growing up. Thanks Matt! Louise
We have never had the pleasure of correspondence or simply talking as one human being to another. For, I am not a parent, but do have a disability, and can relate to every word in your post – even the ones which we have locked away in our hearts.
Our journey for peace and self-acceptance is as life itself: “never ending and always changing.”
For instance, I recently became an uncle. My nephew (above) is four-and-a-half-months old – and I know that babies usually roll over at the age of five or six months. Hence, I find myself saying: “Hey Buddy (this is my nickname for him). Are you going to do the ‘roll’ for your uncle, because we’ve had enough of disability in this house. You need to crawl, walk, run around, ride a bike, and get dirty.”
I've spent most of my life trying to hide or outrun my cerebral palsy, until a friend wrote to me and said, “My cancer is no more a part of me than your disability is a part of you; it's something we live with, but it doesn't define us.” Her name was Alexandra and you would have loved her.
I've failed more than anyone ever should, and like you, have struggled with wordless prejudice, but possess the wisdom to learn from my mistakes and the will to try again.
Due to life experience and disability, I have become a man that I hope most people will want to know – a man of intelligence, compassion, understanding, acceptance, strength and love. I pray that the woman of my dreams will look beyond my wheelchair and crutches to see this in me. This is who I am, and who I will always be.
I never thought that I would be writing or commenting on the BLOOM blog, as I did not wish to be an advocate for people with disabilities, but a voice in which everyone could find a home.
My disability will forever force me to think and operate beyond the narrow vision of normalcy, but it has been the most common people – those like Louise, John Kooy (my friend and orthotist at Holland Bloorview), and all of you – who have helped me embrace a growing sea of humanity which is infinitely evolving. Everyone is different, special, and equal.
My name is Matt and I am truly honored to meet you.